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Medidata’s Patient Insights Board members gathered in the company’s New York office in July for a Design Studio Summit—the first in-person gathering of the board since 2019. The focus of the summit was to examine the industry benefits of clinical trial participants providing ratings and reviews of their clinical trial experiences.  Participants also included representatives from Circuit Clinical, an integrated …

Gathering Insights to Improve the Patient Experience in Clinical Trials  Read More »

This blog was authored by Sheila Johnson. Sheila is a pioneering breast cancer advocate with a particular focus on the Black community. She is a member of Medidata’s Patient Insights Board. Being diagnosed with Metastatic Breast Cancer (MBC) was one of the scariest moments of my life. My mom received the same diagnosis in 2001 …

Breast Cancer Disparities and Black Family Cancer Awareness Week Read More »

Black Lives Matter means ensuring African American women/men receive the same level of care as all others affected by this disease. Black Lives Matter because breast cancer does not discriminate by race, but statistics show that black women are dying at a 42% faster rate than any other race. Black Lives Matter because WE ARE …

Why Black Lives Matter: From a Black MBC Patient Read More »

I love traveling and sharing information that can help women through their breast cancer diagnosis. Being diagnosed with metastatic breast cancer I never knew what part of my life would change, or even if it would change at all.  There were a lot of what ifs and many many questions.  Diagnosed at 43, I had to learn …

Let’s Take Our Power Back from Cancer Read More »

Survivor is defined by the National Cancer Institute as “one who remains alive and continues to function during and after overcoming a serious hardship or life-threatening disease. In cancer, a person is considered to be a survivor from the time of diagnosis until the end of life.” https://www.cancer.gov/publications/dictionaries/cancer-terms/def/survivor Being a metastatic breast cancer patient and …

Being a Survivor Read More »